"Generating new knowledge to improve patient care"
What is QRESEARCH?
is a large consolidated database derived from the pseudonymised health records
of over 24 million patients.
- The data
currently come from approximately 1500 general practices using the EMIS clinical
- The practices
are spread throughout the UK and include data from patients who are
currently registered with the practices as well as historical patients who
may have died or left.
records extend back to the early 1990's making it one of the largest and
richest general practice databases in the world.
develop and maintain a high quality database of general practice derived data linked to secondary care data
for use in ethical medical research.
- It contains
socio-economic details of each patient's postcode
- The data
extracted will contain no strong patient identifiers since the data are de-identified at source (see Confidentiality)
- Patients can opt
- The database
will be open to academic researchers with ethical committee approval
- The researchers
will be provided with anonymised patient level data that is required to answer
their research question - not the whole dataset
- The costs of use
of the data will be carefully controlled to allow the scheme to be
self-funding but to allow good access to academic researchers
- Analyses are
undertaken to demonstrate the accuracy and completeness of the data and
are available for morbidity analyses
- Following review
by the QResearch Advisory Board, Trent Research Ethics Committee and the
Ethics and Confidentiality Committee of the National Information
Governance Board, the entire database has been linked to cause of death
data, cancer and hospital data at individual patient level with
linkages extending back as far as 1993.
- The linked data are only available at the University of Nottingham and the University of Nottingham is the sole data controller for individual datasets (i.e. death, cancer, hospital data) and for the resulting database including the linnked datasets.
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